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Archive for the ‘Scleroderma’ Category

“Eating Well with Scleroderma” Video

In Autoimmune disease, Scleroderma, Wellness on September 6, 2013 at 9:40 AM

Living with an autoimmune chronic disease, such as systemic scleroderma, fibromyalgia, lupus or Crohn’s, undoubtedly tests one’s ability to maintain a happy and productive life. In my opinion, there is no worse feeling than losing control over your own body. The unpredictable nature of autoimmune illness renders you helpless in the face of physical pain, debilitating fatigue, and unceasing emotional turmoil, and has the capacity to steal your quality of life. Systemic scleroderma invaded my body over 11 years ago, and I have struggled to meet every physical and emotional challenge this savage beast has thrown my way. As a practicing dietitian, I have the advantage of knowing how to modify my eating and lifestyle habits to manage the symptoms and resulting stress. I would like to share the filmed presentation I offered at the national Scleroderma Foundation’s annual Patient Education Conference in Atlanta this past summer. Even though the presentation is tailored to the specific needs of patients with scleroderma, the information and suggestions apply to everyone living with autoimmune illness.

The direct link to the presentation will not paste on this page, so I suggest connecting here to http://www.youtube.com and then typing “Linda Kaminski Eating Well with Scleroderma” in the search box at the top on the YouTube home page. It will be the first title listed. Enjoy and I hope my suggestions help you live a longer, healthier life DESPITE scleroderma or any other autoimmune condition. Don’t hesitate to contact me with any questions or concerns: lindakaminski@thenuttynutritionist.com

Live well! Feel well!

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Online Nutrition Guide for Scleroderma Patients

In Scleroderma on December 8, 2011 at 7:04 PM

In response to numerous questions and challenges faced by patients living with scleroderma,  Dr. Dinesh Khanna, rheumatologist and director of  The University of Michigan Scleroderma Program, asked me to co-author a comprehensive nutrition article addressing essential diet and lifestyle suggestions for fighting fatigue, inflammation, malnutrition, and the plethora of gastrointestinal challenges scleroderma patients face on a daily basis.   As a scleroderma patient myself, I was more than honored to have this opportunity to collaborate with Dr. Khanna and construct a useful resource for patients battling a disease that can be so nutritionally devastating.

Systemic scleroderma is a condition in which the immune system over-stimulates the collagen producing cells of the body causing inflammation and an excessive buildup of collagen, leading to hardened skin and fibrosis of internal organs such as the lungs, digestive tract, and blood vessels.  While there are no specific foods or nutrients capable of reducing collagen production, certain dietary changes can have a positive impact on fatigue, inflammation, digestive dysfunction, and risk of malnutrition. 

Topics addressed include:

  • general diet recommendations for all patients living with scleroderma
  • how to identify symptoms of malnutrition and ways to improve calorie and nutrient intake to prevent malnutrition or restore one’s nutritional status
  • explanation and outline of the FODMAP diet, often prescribed for managing severe gastrointestinal symptoms
  • specific dietary suggestions for improving reflux, constipation, fatigue, poor circulation, and tight, thickened skin

For the complete “Eating Well With Scleroderma” article, link to U of M’s Scleroderma Program website:

http://www.med.umich.edu/scleroderma/patients/nutrition.htm

This article will also be featured in an upcoming issue of Scleroderma Voice magazine and is being converted into a educational brochure by the Scleroderma Foundation.  There is very little up-to-date nutrition information available today for people living with systemic scleroderma.  It is my hope that these publications will provide much needed nutritional guidance and enhance patients’ quality of life.

Live well!  Feel well!

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